rarelegacyest21

On July 13 2020 God blessed me with my baby Boy Eric Rowsey Jr

Weighing in at 5.7 lbs. He was Perfect. But at just 2 Weeks of life he was Diagnosed with a Rare medical condition that affects every 1 to 10,000 Babies Called Charge Syndrome.

CHARGE Syndrome is a genetic Syndrome that affects the organs and causes physical, swallowing and breathing difficulties. 

The Letters in CHARGE stands for:

C-Coloboma- in the eyes that can cause blindness 

H- heart defects

A- Astresia of the chonae - Choanal atresia is a congenital narrowing of the back of the nasal cavity that causes difficulty breathing 

R-Restriction of G- Growth development 

E- Ear abnormalities and deafness.

Due to this medical condition my son currently has vision loss in his left eye. He is deaf. He also has a Trache, a feeding Tube and is currently on a ventilator.

I started this brand to bring Awareness and because I want my son to know that no matter what your physical features are no matter what your Condition is you can still be great. You can do whatever you set your mind to. You are brave You are a Fighter You are You. This is your Legacy.

Never give up.